Houda El-Houry Webster

Houda was born in Lebanon and was diagnosed with lupus when she was only nineteen years old.  She never ‘suffered’ with the disease.  Instead, she probably lived life more fully because of it. She loved to travel and would always make the most of the moment she was in.  We never even knew she was…

Support This Site & Help Keep Us Running

On 11th May 2018 we celebrate 20 years since a small article in a UK Womans magazine asking if anyone had heard of TTP and from that article the TTPNetwork was born!   Since the early days we had a website but in recent years as technology has moved on we have needed to pay to…

TTP London Bridgathon

Another great day for TTP London Bridgathon   Over 90 people took part in the 2017 sponsored walk to raise funds for TTP Education & Research. Despite the forecast for rain, the weather was fine and there was every age group represented from toddlers in prams to pensioners, with even a couple of our four…

Travel Translation Documents

TTP patients often worry about travelling abroad and what would happen with their treatment if they had a relapse or felt unwell in a foreign country. The first letter below, in English, can be used to give to a hospital or doctor in this country and often abroad, however, it has also been translated into…

Grief & Loss

Many books have been written on how to deal with grief and loss. In our darkest and bleakest moments, we can pick up one of these books and try to make sense of how we should behave or feel following the death of a loved one.   We can learn about the process through which…

Gemma’s Story

Saturday 20th August 2005 was like any other day, apart from the fact that my husband and I were going on holiday to Spain. Our daughter Gemma had kindly offered to take us to the Airport. We were due to leave home around 6:15am and as usual it was a bit of a struggle getting…

Jo’s Story

In 1995, aged twenty-four, Jo McAuliffe was diagnosed with a rare blood condition Thrombotic Thrombocytopenic Purpura or TTP. Jo felt lonely and confused and wanted to speak to others who had been in a similar situation. She quickly found that as the condition was so rare, there were no support groups or opportunities to contact…

TTP Network Events

From Fund Raisers To Fun Days

TTP Network Arranged A Number Of Events Per Year For All The Family