Seeking Your Views: TTP Network Buddy Scheme

TTP Network Buddy Scheme   At TTPNetwork we are committed to improving ways to help fellow TTP patients connect with each other.  Through our facebook group we all have access ‘anytime, anywhere’ to a great way to connect with our wider TTP community. Alongside this we also have our TTP Buddy scheme – ‘TTP Buddies’,…

NHS TTP Patients Consultation

NHS TTP Patients Consultation   Date: Commencing 7th September 2018   NHS England are looking at creating specialist treatment Centre’s across England for patients experiencing TTP.  The public are invited to respond to the consultation.   Please invite your friends and family to comment if they wish to.  Please also share with any fellow TTP patients.…

TTP Bridgathon 2018: A Great Success

A great turnout for London Bridgathon 2018   Over 70 people joined the annual sponsored walk covering some of London’s most iconic sites. The walkers received a T-Shirt and walking map then headed off to enjoy the lovely sunshine and sites. Some of them including the four legged variety who seemed to love the attention…

Event – TTP Education & Research Patient Day

TTP Education and Research Patient Day   Saturday 6 October 2018 – Save the Date   The TTP Patient Day will include guest speakers, a buffet lunch and an opportunity to meet other patients. There will also be the chance to put forward your questions to a panel of speakers and get the latest information about TTP…

Upcoming Event – TTP Bridgathon 2018

Sponsored walk in aid of TTP Education & Research and related Platelet Disorders   Date: Sunday 16 September 2018 Time: Registration 11am-11.45am (group photo at 11.45am.  Walk will start at midday) Location: Vauxhall Park, Lawn Lane entrance (South Lambeth Road), SW18 1GA (nearest tube Vauxhall Station)   Please join the TTP Medical Team, TTP Patients…

Jamie’s Story

Hi, my name is Jamie and I was diagnosed with TTP in July 2016. At the time I was 44 years of age and in what I thought relatively good health. I first noticed discolouration to my feet and legs which at first I thought was the beginnings of an infection in my eczema on…

Houda El-Houry Webster

Houda was born in Lebanon and was diagnosed with lupus when she was only nineteen years old.  She never ‘suffered’ with the disease.  Instead, she probably lived life more fully because of it. She loved to travel and would always make the most of the moment she was in.  We never even knew she was…

Support This Site & Help Keep Us Running

On 11th May 2018 we celebrate 20 years since a small article in a UK Womans magazine asking if anyone had heard of TTP and from that article the TTPNetwork was born!   Since the early days we had a website but in recent years as technology has moved on we have needed to pay to…

TTP London Bridgathon

Another great day for TTP London Bridgathon   Over 90 people took part in the 2017 sponsored walk to raise funds for TTP Education & Research. Despite the forecast for rain, the weather was fine and there was every age group represented from toddlers in prams to pensioners, with even a couple of our four…