Facebook Group

We have moved away from a web-based forum in favour of our popular Facebook group. Join our group, it’s a fantastic way to meet others who’s lives have been affected by TTP and stay up to date with the latest news and events. Our online community is growing with 369 active members, 6 administrators and many discussions happening right now!

Our Facebook groups provides a more personal, interactive environment where you can:

  • Discuss common problems or issues related to your illness
  • Become a TTP Buddy, supporting others
  • Connect with new friends
  • Get involved with our events

Please take a moment to JOIN TODAY.

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TTP Buddies

If you have TTP or have just been diagnosed with the condition you may want to talk to someone about how your treatment is going and how they cope with the disorder as they may be many years post first diagnosis.

 

Alternatively, you may just want to talk to someone who can identify with your rare condition so you don’t have a sense of being isolated. Perhaps you were diagnosed a few years ago and now want to speak to someone who understands what it is like living with TTP and perhaps facing regular treatment. Each TTP patient has different needs and sometimes different treatment but the underlying issues are still the same.

 

Ideally your TTP buddy would be located close to where you live or where you have treatment so if you feel like you both want to meet for a coffee it would be possible, however, as TTP is a rare condition the chances are it would be someone you could speak with on the phone, email or text as and when it suits both of you.

 

If you would like to be put in touch with a TTP buddy please use the contact form below and we will do our best to match you with someone suitable. Please do remember that TTP buddies are volunteers, most of whom have no formal counselling or medical training but do have the same medical condition as you and can identify with what you are going through. TTP Network takes no responsibility for issues that are discussed between a patient and their buddy.

Donate

Please make your donation to our charity TTP Education and Research by Cheque or via our Donation Page.

If you are a UK taxpayer and pay an amount of UK income or capital gains tax at least equal to the tax that can be reclaimed in the tax year, please complete this Gift Aid Declaration Form (PDF).

Cheque payable to UCL Hospital Charity

Please post cheques and Gift Aid forms to:

Haemostasis Research Unit
University College Hospital
1st Floor
51 Chenies Mews
London
WC1E 6HX

Volunteers

TTP Network is a patient-led organisation run by volunteers, many of whom have TTP. There are many roles which you as a patient, family member, friend, medical practitioner or interested party could do. This could include getting in contact with medical professionals to inform them of the TTP Network, coordinating a patient network meeting near you, attending a key regional or national meeting, sharing information on social media sites, help with lobbying for more funds or fundraising yourself. You could be a TTP buddy where you as a TTP patient can offer support to another TTP patient.

If you have some time and skills that you feel would be valuable to the network please get in touch.