The ConNeCT study is a UK based study, approved by the NIHR, aiming to improve our understanding of complications involving the brain and nervous system in TTP. The results of the study will help to inform better management of the neurological complications of TTP. TTP patients have been involved in designing this study led…
Sunday 11 September 2022 Join us for a sponsored walk along the River Thames taking in some of the most iconic sites across the capital and to raise funds for TTP Education & Research and related platelet disorders. Time: Registration 11am-11.45am (Group photo at 11.45am) Walk will start at midday. You can go as fast…
TTPNetworkOct21 Registry Powerpoint
Acquired thrombotic thrombocytopenic purpura: A rare disease associated with BNT162b2 vaccine: Comment from Doyle et al.
A couple of years ago some patients from TTPNetwork took part in some research. Here are the results. If you would like to take part in research on TTP pop over to our Research & Study Opportunity page. See results here
TTPNetwork are delighted that Professor Marie Scully has been included in the Queens Birthday Honours and is to receive an MBE for services to blood disorders. This award is well deserved in respect of the ground breaking work during the COVID pandemic. Read the full statement from UCL: https://www.ucl.ac.uk/news/2021/jun/ucl-staff-and-alumni-recognised-queens-birthday-honours Congratulations Prof.…
A brilliant organisation
Many books have been written on how to deal with grief and loss. In our darkest and bleakest moments, we can pick up one of these books and try to make sense of how we should behave or feel following the death of a loved one. We can learn about the process through which…
We are proud as punch to see that our Patron Professor Marie Scully has made a groundbreaking discovery in the fight with COVID-19. Here is the article from the Guardian Newspaper dated 13th April 2021: https://www.theguardian.com/society/2021/apr/13/how-uk-doctor-marie-scully-blood-clotting-link-astrazeneca-covid-jab-university-college-london-hospital
