Kellie’s story

This is me and my story with TTP (hoping this will help anyone who’s new to this situation because we all know how scary this disease can be at first) and to help me to get it off my chest as I haven’t done as of yet. Ok so i was a 25 year old…

COVID19 and TTP Update

Prof. Marie Scully University College Hospital, London 23rd March 2020   I’m sure everyone has heard the PMs speech this evening: stay indoors unless absolutely necessary to travel. From the updated ‘at risk’ groups; patients with rare conditions are considered at risk. TTP is a rare condition but not necessarily at risk. There are 100’s…

COVID19 and TTP

Prof. Marie Scully University College Hospital, London 15th March 2020   As you all know, COVID19 has been heightened to a pandemic. There are continuous updates from Government and senior scientists and many changes are required within the NHS at this time. There may be regional variations but there have had to be significant and…

Walkers triumph at Bridgathon 2019

London Bridgathon 2019   A glorious warm sunny day greeted almost 70 walkers at the annual London Bridgathon sponsored walk. TTP patients, family and friends got the chance to meet each other and take in the sights of the capital.   Some decided on a gentle stroll with a picnic, whilst others took steps to…

Sanofi Genzyme Study

TTP Network would like to signpost members to a Sanofi Genzyme study which aims to help better understand what life is like after being diagnosed with TTP. We are looking for people with acquired TTP (aTTP) who have experienced an episode in the last 12 months, and for family members or friends of someone with…

Professor Marie Scully

Professor Marie Scully We are privileged and honoured to have Professor Marie Scully, as our Patron. Professor Scully is an inspirational woman, and Consultant Haematologist  at University College London. Prof. Scully has been an unwavering champion of TTPNetwork for many years and her invaluable support has made a huge impact on raising awareness of our…