TTP Network is a patient-led organisation run by volunteers, many of whom have TTP. There are many roles which you as a patient, family member, friend, medical practitioner or interested party could do. This could include getting in contact with medical professionals to inform them of the TTP Network, coordinating a patient network meeting near you, attending a key regional or national meeting, sharing information on social media sites, help with lobbying for more funds or fundraising yourself. You could be a TTP buddy where you as a TTP patient can offer support to another TTP patient.
If you have some time and skills that you feel would be valuable to the network please get in touch.