Opinion Health Research Study

We have been asked by Opinion Health to invite our French, German and USA based patients to take part in a research study.  Please see the attached letter for further information.   TTPNetwork will receive a payment for each patient that takes part in this study. Download letter   Opinion Health nous a demandé d’inviter nos…

Professor Marie Scully to receive an MBE

TTPNetwork are delighted that Professor Marie Scully has been included in the Queens Birthday Honours and is to receive an MBE for services to blood disorders.   This award is well deserved in respect of the ground breaking work during the COVID pandemic.   Read the full statement from UCL:   https://www.ucl.ac.uk/news/2021/jun/ucl-staff-and-alumni-recognised-queens-birthday-honours   Congratulations Prof.…

COVID19 and TTP – Vaccine

Prof. Marie Scully University College Hospital, London 22nd December 2020   COVID 19 vaccination and TTP The COVID 19 vaccine is being rolled out and over the next few weeks/months everyone will be called. The majority of patients should have it when offered-currently there are 2 doses. There are a few considerations for patients with…

COVID19 and TTP Update

Prof. Marie Scully University College Hospital, London 23rd March 2020   I’m sure everyone has heard the PMs speech this evening: stay indoors unless absolutely necessary to travel. From the updated ‘at risk’ groups; patients with rare conditions are considered at risk. TTP is a rare condition but not necessarily at risk. There are 100’s…

COVID19 and TTP

Prof. Marie Scully University College Hospital, London 15th March 2020   As you all know, COVID19 has been heightened to a pandemic. There are continuous updates from Government and senior scientists and many changes are required within the NHS at this time. There may be regional variations but there have had to be significant and…

TTP Buddies Newsletter – December 2018

I want to welcome you all to the first edition of our TTP Buddies newsletter. I have put this together to share the findings from the recent survey and to start a conversation with you all about TTP Buddies. At the TTP Network we are committed to find ways to bring fellow TTP patients together.…