A patient led organisation supporting those diagnosed with Thrombotic Thrombocytopenic Purpura (TTP)
To provide support, advocacy and accurate information to patients, their families and others with an interest in TTP.
Since 2022 NHS England have commissioned 9 regional specialist centres for the treatment and care of patients with TTP.
The 9 centres are based across 11 hospital sites in England.
Every patient with a diagnosis of TTP should be linked in with a specialist centre for TTP. In some cases patients may have routine check-ups with their local consultant but they would still be listed with the specialist centre.
View the map below to find your nearest specialist centre.
This group is for anyone dealing with the rare blood disorder Thrombotic Thrombocytopenic Purpura. Their familes or medical professionals.
Donate at our fundraising platform, or join our shop and give scheme or our lottery. We are also keen to hear from you if you wish to fundraise on our behalf.
TTPNetwork is led by volunteers and we welcome any support, particularly if you have experience of being a trustee.
Thrombotic Thrombocytopenic Purpura (TTP) is a rare bood disorder, with between 1.2 and 11 new cases each year per million of the population.
It is more commonly found in women than men and Black African and Caribbean people are over represented.
There are two main forms of TTP. Aquired TTP and Congenital TTP. Most people with TTP will have aTTP as cTTP is more rare.
Below you will find a range of useful information.
Contact us for help and support with a TTP diagnosis
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