TTP Network is a UK patient-led organisation originally set up by a patient, Jo McIntyre.
Jo was diagnosed in 1995 with this rare blood disorder and wanted to reach out to other patients to learn more about her condition.
The TTP Network aims to support patients and their families by providing information after diagnosis and suggest ways to live with it.
The Network also provides Clinicians with information on this rare disorder and ensures it is available as a useful reference point for feedback from patients as a group.

Providing Information

To be a useful source of TTP information for patients, friends, and families.

Patient Network

Provide contact between patients so they can support each other as a group.

Patient Champions

Patient champion for TTP diagnosis and treatment across the UK and across the world.

Latest Articles

Our New Website

As many of you will know, the TTP Network is a UK patient-led organisation originally set up by a patient, Jo McIntyre. The TTP Network aims to support patients and their families by providing information after diagnosis and suggest ways to live with it.   In 1999, the TTP Network built a dedicated website to take the…

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Travel Translation Documents

TTP patients often worry about travelling abroad and what would happen with their treatment if they had a relapse or felt unwell in a foreign country. The first letter below, in English, can be used to give to a hospital or doctor in this country and often abroad, however, it has also been translated into…

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