TTP Buddies Newsletter – December 2018
I want to welcome you all to the first edition of our TTP Buddies newsletter.…
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TTPNetwork supports patients with the condition Thrombotic Thrombocytopenic Purpura (TTP).
We also support family, friends and medical staff. We are UK based but we have visitors from around the world.
On this site you will find information and sources of help for TTP, including documents to help when travelling abroad, links to best practice guidelines and the opportunity to make contact with others dealing with TTP.
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Ann’s Story
One Year On… Sitting on the plane yesterday, flying back from Iraq, I vividly recalled a similar, but much longer journey exactly one year before. I am a TTP survivor. I had been helping facilitate a workshop in Guatemala as part of my assignment as a Humanitarian Aid worker. I had never really shaken…
UK TTP Registry
The United Kingdom Thrombotic Thrombocytopenic Purpura (TTP) Registry The UK TTP registry, involves all sites treating newly presenting Thrombotic Thrombocytopenic Purpura (TTP). From this registry, important epidemiological data will be obtained. Admission and remission samples will be collected. DNA will be collected and analysed from patients wishing to participate to determine if any link…
Upcoming Event – TTP Bridgathon 2019
London Bridgathon Sponsored Walk 2019 to raise funds for TTP Education & Research. More details to follow soon! You can find details of the 2018 event HERE.
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