Living with TTP – Acute & Long Term Neurological Complications Webinar – 9th June
Announcing: Living with TTP – Acute & Long Term Neurological Complications Webinar Tuesday 9th June,…
Read more
TTPNetwork supports patients with the condition Thrombotic Thrombocytopenic Purpura (TTP).
We also support family, friends and medical staff. We are UK based but we have visitors from around the world.
On this site you will find information and sources of help for TTP, including documents to help when travelling abroad, links to best practice guidelines and the opportunity to make contact with others dealing with TTP.
Our Aims
Providing
Information
Patient
Network
Patient
Champions
Featured Posts
Latest Articles
Living with TTP – Acute & Long Term Neurological Complications Webinar – 9th June
Announcing: Living with TTP – Acute & Long Term Neurological Complications Webinar Tuesday 9th June, 11am We are excited to announce a second, scheduled for Tuesday 9th June at 11am. We will be in the company of Dr Tina Dutt presenting to patients on the subject of ‘Living with TTP- acute and longer-term neurological…
Professor Marie Scully COVID19 & TTP Webinar – 18th May
Announcing: The first ever TTPNetwork Webinar. Monday 18th May, 19:30hrs Professor Marie Scully discusses COVID19 and TTP Book your tickets here: (click the link) https://ttpnetworkprofscullyttp-covid.eventbrite.co.uk A couple of days before the event you will be sent a Zoom link and code which will give you access to the webinar. Please check your spam folder!…
Advice from TTP Clinical Specialist Nurse Ros Newton
We asked TTP Clinical Specialist Nurse Ros Newton about what patients should expect after leaving hospital and beyond: How often should patients expect to be seen once they leave hospital and what tests should they expect? Post-acute episode patients can expect to be seen at least weekly for four weeks, as their…