COVID19 and TTP Update
Prof. Marie Scully University College Hospital, London 23rd March 2020 I’m sure everyone has…
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TTPNetwork supports patients with the condition Thrombotic Thrombocytopenic Purpura (TTP).
We also support family, friends and medical staff. We are UK based but we have visitors from around the world.
On this site you will find information and sources of help for TTP, including documents to help when travelling abroad, links to best practice guidelines and the opportunity to make contact with others dealing with TTP.
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COVID19 and TTP Update
Prof. Marie Scully University College Hospital, London 23rd March 2020 I’m sure everyone has heard the PMs speech this evening: stay indoors unless absolutely necessary to travel. From the updated ‘at risk’ groups; patients with rare conditions are considered at risk. TTP is a rare condition but not necessarily at risk. There are 100’s…
Walkers triumph at Bridgathon 2019
London Bridgathon 2019 A glorious warm sunny day greeted almost 70 walkers at the annual London Bridgathon sponsored walk. TTP patients, family and friends got the chance to meet each other and take in the sights of the capital. Some decided on a gentle stroll with a picnic, whilst others took steps to…
Sanofi Genzyme Study
TTP Network would like to signpost members to a Sanofi Genzyme study which aims to help better understand what life is like after being diagnosed with TTP. We are looking for people with acquired TTP (aTTP) who have experienced an episode in the last 12 months, and for family members or friends of someone with…