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Welcome to TTPNetwork

A patient led organisation supporting those diagnosed with Thrombotic Thrombocytopenic Purpura (TTP)

Our Aims

To provide support, advocacy and accurate information to patients, their families and others with an interest in TTP.

Information

Advocacy

Patient Networking

NHS England Specialists Centres

Since 2022 NHS England have commissioned 9 regional specialist centres for the treatment and care of patients with TTP.

The 9 centres are based across 11 hospital sites in England.  

Every patient with a diagnosis of TTP should be linked in with a specialist centre for TTP. In some cases patients may have routine check-ups with their local consultant but they would still be listed with the specialist centre.

View the map below to find your nearest specialist centre.

What is TTP?

Thrombotic Thrombocytopenic Purpura (TTP) is a rare bood disorder, with between 1.2 and 11 new cases each year per million of the population.

It is more commonly found in women than men and Black African and Caribbean people are over represented.

There are two main forms of TTP. Aquired TTP and Congenital TTP. Most people with TTP will have aTTP as cTTP is more rare.

Resources

Below you will find a range of useful information.

Get help

Contact us for help and support with a TTP diagnosis

Latest News

Announcement

Keen Runner?

Raise funds while you run!

Webinars

You, me and TTP - Film Screening

Join us on 21st February at 7pm to watch You, me and TTP

Announcement

Closing the Gap: A roadmap to achieving optimal care for TTP

A roadmap for improving care for those diagnosed with TTP

Our Shop

Visit our shop. All sales help support the work we do.