Upcoming Event – Walk Local for TTP
Walk Local for TTP 2020 Sponsored walk in aid of TTP Education & Research and…
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TTPNetwork supports patients with the condition Thrombotic Thrombocytopenic Purpura (TTP).
We also support family, friends and medical staff. We are UK based but we have visitors from around the world.
On this site you will find information and sources of help for TTP, including documents to help when travelling abroad, links to best practice guidelines and the opportunity to make contact with others dealing with TTP.
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Latest Articles
Caplacizumab Licensed For Use In Scotland
Fantastic news! I can share with you as of 2pm today the Scottish Medicines Consortium (SMC) have announced that they have accepted the medicine: Caplacizumab through an expedited approach to minimise delay in patient access following the early phase of the COVID-19 pandemic. This means that Caplacizumab will be licensed for use in Scotland. Thank…
Different diseases but still linked – TTP and aHUS
It is not unheard of for someone with atypical Haemolytic Uremic Syndrome (aHUS) to have had an initial diagnosis of Thrombotic Thrombocytopenia Purpura (TTP). There is no statistic for how many have been misdiagnosed, just anecdotal evidence popping up over the years. Such misdiagnosis is often discovered when a patient receiving a kidney transplant presents…
Dr Joanne Doleman’s story
I was honoured to be asked to write a few words for the TTP Network pages about me and my TTP journey. I thought this would be really easy, after all it’s me that has been ill. It’s amazing how hard I have found this though. The time before knowing what was wrong was easy…