Upcoming Event – TTP Bridgathon 2019
London Bridgathon Sponsored walk in aid of TTP Education & Research and related platelet disorders…
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TTPNetwork supports patients with the condition Thrombotic Thrombocytopenic Purpura (TTP).
We also support family, friends and medical staff. We are UK based but we have visitors from around the world.
On this site you will find information and sources of help for TTP, including documents to help when travelling abroad, links to best practice guidelines and the opportunity to make contact with others dealing with TTP.
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Sanofi Genzyme Study
TTP Network would like to signpost members to a Sanofi Genzyme study which aims to help better understand what life is like after being diagnosed with TTP. We are looking for people with acquired TTP (aTTP) who have experienced an episode in the last 12 months, and for family members or friends of someone with…
Could you share your story?
Sanofi is a global pharmaceutical company with an interest in aTTP (www.sanofi.co.uk). They are looking for individuals who would be willing to share their story of living with TTP to be used to raise awareness of TTP with policy makers, Members of Parliament, medical professionals and the media. All contributors can remain anonymous, but the…
IQVIA Patient Study
TTPNetwork has been approached by a research company called IQVIA. IQVIA, a global healthcare research firm, is running a research study to explore the experience of patients receiving infusions as long-term treatment for a condition or disease, or on a continuing basis to prevent a condition or disease from occurring, either at home or in…