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News

Latest news, events and information.

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Announcement

Pick a Penguin!

Christmas 2024 Fundraiser. If you'd rather make a donation to charity than send cards, why not Pick a Penguin and support TTPNetwork?

Announcement

E-Cards

TTPNetwork have launched a range of E-Cards. Choose a Christmas card from our e-card range, which even includes two designs we've previously used on physical cards and created

Announcement

Luke's Marathon Run

Luke is running the London Marathon for us following his sisters TTP diagnosis.

Events

Andrews Fundraiser

Andrew's Dad was diagnosed with TTP in May 2024. To raise awareness & funds he & his work colleagues are taking part in a 10 mile march carrying 40lbs!

Announcement

You, Me & TTP

A short film, made by patients for patients with rare blood condition thrombotic thrombocytopenic purpura - TTP

Articles

Patient Designs TShirt for TTP

TTP Patient has designed a T shirt to raise funds for TTPNetwork

Announcement

Our Lottery

Have you joined our lottery?

Events

UCL Support Group

UCL Patient Support

Articles

Closing the Gap: A roadmap to achieving optimal care for TTP

A roadmap for improving care for those diagnosed with TTP

Announcement

Statement 7th August 2024

A statement from TTPNetwork

Announcement

Digital Patient Card

Download your digital patient Alert Card

Events

August Webinar - Preventing TTP Relapses; Signs, symptoms and what to do

Book your tickets for our next webinar here

Articles

New Item: Sophies Story

One year ago Sophie was diagnosed with TTP at the time she gave birth to her beautiful and much longed for son. Read Sophie's story by clicking below.

Announcement

Matty Jackman fundraiser

Matty's Fundraiser for Dad

Articles

National TTP Psychology Team

Details of the Psychology Team who are working with the TTP Specialist Centres

Announcement

cTTP Fundraiser - Chase the Sun

A cTTP patients huband is raising money - you can help

Events

Bridgathon 2024

TTP London Bridgathon 2024 on Sunday 8th September 2024. Join us at TTP London Bridgathon for our annual sponsored walk for UCLH TTP Education & Research Charity. Click below.

Announcement

2024 Award for Exceptional Care to TTP Patients

Announcing the winners of the 2024 Award for Exceptional Services to TTP Patients

Events

Event for Sheffield Patients

Sheffield Patient Event - Saturday 20th July 2024

Announcement

Patient Discussion Guide

A discussion guide for patients

Articles

The TTP Specialist Nurse: An advocate for patients and professionals

New published article - TTP Specialist Nurse

Articles

Sophies Fundraiser

Patient Sophie is raising funds for TTP

Announcement

Keen Runner?

Raise funds while you run!

Webinars

You, me and TTP - Film Screening

Join us on 21st February at 7pm to watch You, me and TTP

Articles

Exceptional Award

Our first Exceptional Award goes to

Announcement

TTP Specialist Centres

TTP service announcement -TTP Specialist Centres

Articles

Obinutuzumab

news about use in TTP

Announcement

Prof Scully (UCL) receives an MBE

Prof Scully (UCL) receives an MBE

Blogs

TTP and HUS

Different Diseases But Still Linked; HUS and TTP

Blogs

Advice from TTP Clinical Specialist Nurse Ros Newton

We asked TTP Clinical Specialist Nurse Ros Newton about what patients should expect after leaving hospital and beyond:

Blogs

Saida & Jo's patient experience

Saida and Jo told Sanofi staff what it was like living with TTP - 2016