News

Help shape the future of TTPNetwork

UCL summer gathering for people affected by TTP - Friday 11th July 1.30-3.30pm

Join our Membership scheme and be first in the know

Book now for the UCLH Education & Research Charity Bridgathon. 7th September 2025

Results from the Eurodis Rare Barometer Survey. Thank you to everyone who took part.

Dawn raises awareness and funds at school

Sophie's story on BBC Radio Shropshire

17th May - Join us for the 2025 Patient Event.

Isabella runs the Bristol Half on 11th May

Rare Disease Day 2025

Lost in the system - A new report written in partnership between The King’s Fund, National Voices and Healthwatch England

London Marathon beckons for Luke!

Knowing Your Rights - Resources from the The Patients Association

A great video from the Patients Association about getting the most out of your healthcare appointments.

Newborn Screening for cTTP

Andrew completes his Challenge

Tom is raising funds for TTPNetwork - you can support him

Good advice from the Fundraising Regulator about donating safely

TTPNetwork have launched a range of E-Cards. Choose a Christmas card from our e-card range, which even includes two designs we've previously used on physical cards and created

Christmas 2024 Fundraiser. If you'd rather make a donation to charity than send cards, why not Pick a Penguin and support TTPNetwork?

Luke is running the London Marathon for us following his sisters TTP diagnosis.

Andrew's Dad was diagnosed with TTP in May 2024. To raise awareness & funds he & his work colleagues are taking part in a 10 mile march carrying 40lbs!

A short film, made by patients for patients with rare blood condition thrombotic thrombocytopenic purpura - TTP

Have you joined our lottery?

TTP Patient has designed a T shirt to raise funds for TTPNetwork

A roadmap for improving care for those diagnosed with TTP

A statement from TTPNetwork

Download your digital patient Alert Card

Book your tickets for our next webinar here

One year ago Sophie was diagnosed with TTP at the time she gave birth to her beautiful and much longed for son. Read Sophie's story by clicking below.

Matty's Fundraiser for Dad

Details of the Psychology Team who are working with the TTP Specialist Centres

A cTTP patients huband is raising money - you can help

TTP London Bridgathon 2024 on Sunday 8th September 2024. Join us at TTP London Bridgathon for our annual sponsored walk for UCLH TTP Education & Research Charity. Click below.

Announcing the winners of the 2024 Award for Exceptional Services to TTP Patients

Sheffield Patient Event - Saturday 20th July 2024

A discussion guide for patients

New published article - TTP Specialist Nurse

Patient Sophie is raising funds for TTP

Raise funds while you run!

Join us on 21st February at 7pm to watch You, me and TTP

Our first Exceptional Award goes to

TTP service announcement -TTP Specialist Centres

news about use in TTP

Prof Scully (UCL) receives an MBE

Different Diseases But Still Linked; HUS and TTP

We asked TTP Clinical Specialist Nurse Ros Newton about what patients should expect after leaving hospital and beyond:

Saida and Jo told Sanofi staff what it was like living with TTP - 2016