Announcement

October 14, 2025

TTP Explainer Video 2025 - with thanks to the family & friends of Callum Heath

Want to understand Thrombotic Thrombocytopenic Purpura (TTP) without the medical jargon? This short explainer video breaks it down in an easy-to-follow way, suitable for all.

July 22, 2025

Volunteer & Trustee Recruitment

Help shape the future of TTPNetwork

May 20, 2025

Become a TTPNetwork Member

Join our Membership scheme and be first in the know

April 28, 2025

Rare Barometer Survey Results

Results from the Eurodis Rare Barometer Survey. Thank you to everyone who took part.

March 5, 2025

Isabella's Fundraiser

Isabella runs the Bristol Half on 11th May

February 28, 2025

Rare Disease Day 2025

Rare Disease Day 2025

February 26, 2025

Lost in the system

Lost in the system - A new report written in partnership between The King’s Fund, National Voices and Healthwatch England

March 6, 2025

Patient Event 2025

17th May - Join us for the 2025 Patient Event.

February 19, 2025

Lukes Marathon run for TTPNetwork

London Marathon beckons for Luke!

January 9, 2025

Generation Study

Newborn Screening for cTTP

January 8, 2025

Toms Fundraiser

Tom is raising funds for TTPNetwork - you can support him

December 5, 2024

E-Cards

TTPNetwork have launched a range of E-Cards. Choose a Christmas card from our e-card range, which even includes two designs we've previously used on physical cards and created

December 5, 2024

Pick a Penguin!

Christmas 2024 Fundraiser. If you'd rather make a donation to charity than send cards, why not Pick a Penguin and support TTPNetwork?

November 14, 2024

Luke's Marathon Run

Luke is running the London Marathon for us following his sisters TTP diagnosis.

October 23, 2024

You, Me & TTP

A short film, made by patients for patients with rare blood condition thrombotic thrombocytopenic purpura - TTP

October 16, 2024

Our Lottery

Have you joined our lottery?

August 7, 2024

Statement 7th August 2024

A statement from TTPNetwork

August 1, 2024

Digital Patient Card

Download your digital patient Alert Card

June 26, 2024

Matty Jackman fundraiser

Matty's Fundraiser for Dad

June 19, 2024

cTTP Fundraiser - Chase the Sun

A cTTP patients huband is raising money - you can help

June 6, 2024

2024 Award for Exceptional Care to TTP Patients

Announcing the winners of the 2024 Award for Exceptional Services to TTP Patients

April 18, 2024

Patient Discussion Guide

A discussion guide for patients

February 1, 2024

Keen Runner?

Raise funds while you run!

June 14, 2021

Prof Scully (UCL) receives an MBE

Prof Scully (UCL) receives an MBE

November 1, 2022

TTP Specialist Centres

TTP service announcement -TTP Specialist Centres