Announcing: The future of TTP in the UK Tuesday 30th June, 7pm Prof. Scully joins us again to talk about Research and Clinical Trials in TTP – The future of TTP in the UK. Book your free ticket here: https://www.eventbrite.co.uk/e/ttpnetwork-prof-scully-research-and-clinical-trials-in-ttp-tickets-108828450826 Please keep an eye out for a confirmation email from EVENTBRITE. A link…
Announcing: Living with TTP – Acute & Long Term Neurological Complications Webinar Tuesday 9th June, 11am We are excited to announce a second, scheduled for Tuesday 9th June at 11am. We will be in the company of Dr Tina Dutt presenting to patients on the subject of ‘Living with TTP- acute and longer-term neurological…
Announcing: The first ever TTPNetwork Webinar. Monday 18th May, 19:30hrs Professor Marie Scully discusses COVID19 and TTP Book your tickets here: (click the link) https://ttpnetworkprofscullyttp-covid.eventbrite.co.uk A couple of days before the event you will be sent a Zoom link and code which will give you access to the webinar. Please check your spam folder!…
London Bridgathon 2019 A glorious warm sunny day greeted almost 70 walkers at the annual London Bridgathon sponsored walk. TTP patients, family and friends got the chance to meet each other and take in the sights of the capital. Some decided on a gentle stroll with a picnic, whilst others took steps to…
The United Kingdom Thrombotic Thrombocytopenic Purpura (TTP) Registry The UK TTP registry, involves all sites treating newly presenting Thrombotic Thrombocytopenic Purpura (TTP). From this registry, important epidemiological data will be obtained. Admission and remission samples will be collected. DNA will be collected and analysed from patients wishing to participate to determine if any link…
London Bridgathon Sponsored walk in aid of TTP Education & Research and related platelet disorders Sunday 15 September 2019 Join us for our annual sponsored walk along the River Thames taking in some of the most iconic sites across the capital and raise funds for TTP Education & Research and related platelet disorders. …
TTP Network Buddy Scheme At TTPNetwork we are committed to improving ways to help fellow TTP patients connect with each other. Through our facebook group we all have access ‘anytime, anywhere’ to a great way to connect with our wider TTP community. Alongside this we also have our TTP Buddy scheme – ‘TTP Buddies’,…
NHS TTP Patients Consultation Date: Commencing 7th September 2018 NHS England are looking at creating specialist treatment Centre’s across England for patients experiencing TTP. The public are invited to respond to the consultation. Please invite your friends and family to comment if they wish to. Please also share with any fellow TTP patients.…
A great turnout for London Bridgathon 2018 Over 70 people joined the annual sponsored walk covering some of London’s most iconic sites. The walkers received a T-Shirt and walking map then headed off to enjoy the lovely sunshine and sites. Some of them including the four legged variety who seemed to love the attention…
TTP Education and Research Patient Day Saturday 6 October 2018 – Save the Date The TTP Patient Day will include guest speakers, a buffet lunch and an opportunity to meet other patients. There will also be the chance to put forward your questions to a panel of speakers and get the latest information about TTP…
Sponsored walk in aid of TTP Education & Research and related Platelet Disorders Date: Sunday 16 September 2018 Time: Registration 11am-11.45am (group photo at 11.45am. Walk will start at midday) Location: Vauxhall Park, Lawn Lane entrance (South Lambeth Road), SW18 1GA (nearest tube Vauxhall Station) Please join the TTP Medical Team, TTP Patients…
Another great day for TTP London Bridgathon Over 90 people took part in the 2017 sponsored walk to raise funds for TTP Education & Research. Despite the forecast for rain, the weather was fine and there was every age group represented from toddlers in prams to pensioners, with even a couple of our four…