At first I thought I had a bad cold and sleeping a lot, and then getting chest pains and my urine was very dark. I went to my doctors seen the nurse practitioner she said it’s a cold and my chest pains were indigestion and my urine was because I was dehydrated. She gave me…
I was honoured to be asked to write a few words for the TTP Network pages about me and my TTP journey. I thought this would be really easy, after all it’s me that has been ill. It’s amazing how hard I have found this though. The time before knowing what was wrong was easy…
This is me and my story with TTP (hoping this will help anyone who’s new to this situation because we all know how scary this disease can be at first) and to help me to get it off my chest as I haven’t done as of yet. Ok so i was a 25 year old…
One Year On… Sitting on the plane yesterday, flying back from Iraq, I vividly recalled a similar, but much longer journey exactly one year before. I am a TTP survivor. I had been helping facilitate a workshop in Guatemala as part of my assignment as a Humanitarian Aid worker. I had never really shaken…
Hi, my name is Jamie and I was diagnosed with TTP in July 2016. At the time I was 44 years of age and in what I thought relatively good health. I first noticed discolouration to my feet and legs which at first I thought was the beginnings of an infection in my eczema on…
Saturday 20th August 2005 was like any other day, apart from the fact that my husband and I were going on holiday to Spain. Our daughter Gemma had kindly offered to take us to the Airport. We were due to leave home around 6:15am and as usual it was a bit of a struggle getting…
In 1995, aged twenty-four, Jo M. was diagnosed with a rare blood condition Thrombotic Thrombocytopenic Purpura or TTP. Jo felt lonely and confused and wanted to speak to others who had been in a similar situation. She quickly found that as the condition was so rare, there were no support groups or opportunities to contact…